"Friendship is born at that moment when one person says to another 'What! You, too? I thought I was the only one.'" ~ C.S. Lewis
Wednesday, March 27, 2013
Saturday, March 16, 2013
In Full Colour
"I gave up my breast for a grandchild."
Yep. That's one of the first things I said to Oldest Son and his wife when I woke from anaesthetic. Dearest One told me days later that I might want to clarify what I meant because I had been pretty loopy at that point. Narcotics or not, I knew exactly what I meant and why.
Funny how one can know exactly what they mean and think it's clear to others, no? So I explained to my daughter-in-law that being without my breast meant being without cancer and living long enough to be a grandma. Gracious woman that she is, she was cool with my explanation.
During the week before I had my mastectomy I listened to a guided meditation for those facing surgery and part of it talked about being surrounded by a magical band of allies in the operating room. In my mind that meant not only those who love me in the here and now but those who have gone on before me - the communion of saints - if you will. It was a comforting thought.
When I was wheeled into the operating room I looked around at the space and realized my magical band of allies would need to squish in tight if they wanted to fit. And so they did. When I was under anaesthetic I saw a beautiful, magical band of allies - all glowing an intense white - outlined in different heights like someone had taken a grey pencil crayon and traced their various heights in one long stroke. I couldn't quite reach out and touch them but they were close. In amongst the beings, who had no distinct features, was this little girl - in full colour - with very distinct features. She had run over to my operating table and was nestling back in between those glowing white beings when I saw her. Her face radiated such indescribable joy that I smile every time I remember her. While she wasn't a mini version of myself I felt she was definitely related to me. I wondered who she was. I thought of the (three) babies I have miscarried.
And it was this in-full-colour-little-girl I was thinking of when I told my son and his wife that I gave up a breast for a grandchild.
In September I will welcome my first grandchild. Boy or girl, my joy is indescribable.

Yep. That's one of the first things I said to Oldest Son and his wife when I woke from anaesthetic. Dearest One told me days later that I might want to clarify what I meant because I had been pretty loopy at that point. Narcotics or not, I knew exactly what I meant and why.
Funny how one can know exactly what they mean and think it's clear to others, no? So I explained to my daughter-in-law that being without my breast meant being without cancer and living long enough to be a grandma. Gracious woman that she is, she was cool with my explanation.
During the week before I had my mastectomy I listened to a guided meditation for those facing surgery and part of it talked about being surrounded by a magical band of allies in the operating room. In my mind that meant not only those who love me in the here and now but those who have gone on before me - the communion of saints - if you will. It was a comforting thought.
When I was wheeled into the operating room I looked around at the space and realized my magical band of allies would need to squish in tight if they wanted to fit. And so they did. When I was under anaesthetic I saw a beautiful, magical band of allies - all glowing an intense white - outlined in different heights like someone had taken a grey pencil crayon and traced their various heights in one long stroke. I couldn't quite reach out and touch them but they were close. In amongst the beings, who had no distinct features, was this little girl - in full colour - with very distinct features. She had run over to my operating table and was nestling back in between those glowing white beings when I saw her. Her face radiated such indescribable joy that I smile every time I remember her. While she wasn't a mini version of myself I felt she was definitely related to me. I wondered who she was. I thought of the (three) babies I have miscarried.
And it was this in-full-colour-little-girl I was thinking of when I told my son and his wife that I gave up a breast for a grandchild.
In September I will welcome my first grandchild. Boy or girl, my joy is indescribable.
Thursday, March 07, 2013
Figuring It Out
"Your vulnerability in being present to what is could be triggering people's pain - pain they might not want to face. So their response to where you are at on the journey is a projection of where they are at not a reflection of where you are at. Perhaps the surgeon, too was uncomfortable with the places your truth was touching in his own life."
Such healing, hopeful words yesterday spoken to me by a therapist who I haven't seen for several years. Good to hear from her that where I am at is where I am at and nothing to feel ashamed of or embarrassed by. Being affirmed in where I am is doing more for me in this transition from health crisis back to 'regular life'(whatever the hell that is) than every suggestion that it is time for me to move on, get with the program, and put this experience behind me.
Last week's conversation with my long time friend was a turning point for me. I breathed a huge sigh of relief and relaxed into acceptance of where I am at. And then my mood lifted significantly. That friend would tell me that it isn't something we need to go pay professionals for but something we used to do for others in friendship and community. I've found myself feeling happy and then confused that I am feeling that way. I had to tell myself that feeling happy doesn't negate what I've been through and now I am on a journey of figuring out how to integrate it without feeling like I'm somehow betraying myself. My therapist told me yesterday this was totally normal and that I would figure it out.
Figuring it out is so different than having it figured out. I hope the first phrase is a life long one and the second one disappears from my vocabulary.

Such healing, hopeful words yesterday spoken to me by a therapist who I haven't seen for several years. Good to hear from her that where I am at is where I am at and nothing to feel ashamed of or embarrassed by. Being affirmed in where I am is doing more for me in this transition from health crisis back to 'regular life'(whatever the hell that is) than every suggestion that it is time for me to move on, get with the program, and put this experience behind me.
Last week's conversation with my long time friend was a turning point for me. I breathed a huge sigh of relief and relaxed into acceptance of where I am at. And then my mood lifted significantly. That friend would tell me that it isn't something we need to go pay professionals for but something we used to do for others in friendship and community. I've found myself feeling happy and then confused that I am feeling that way. I had to tell myself that feeling happy doesn't negate what I've been through and now I am on a journey of figuring out how to integrate it without feeling like I'm somehow betraying myself. My therapist told me yesterday this was totally normal and that I would figure it out.
Figuring it out is so different than having it figured out. I hope the first phrase is a life long one and the second one disappears from my vocabulary.
Saturday, March 02, 2013
Resting
I spent several hours on the phone yesterday with a woman who's been pivotal in my conversion journey, someone who has travelled alongside me for over 25 years.
The night before I remembered this friend and how last summer she'd explained a long absence from my life during a most difficult time of her own. She told me that everything she'd believed had been turned upside down and she'd had no words. Ah, I thought, someone who knows what it's like to be rendered mute.
I could barely get the words out through my tears yesterday as I told her I needed her to tell me if the upside downness ends.
I'm pretty sure that that conversation did more for me than any professional help ever will. What a relief to hear someone say that the place I find myself in is not something to fix, but a place to rest in, in order that the work being done in the depths of me can be done.

The night before I remembered this friend and how last summer she'd explained a long absence from my life during a most difficult time of her own. She told me that everything she'd believed had been turned upside down and she'd had no words. Ah, I thought, someone who knows what it's like to be rendered mute.
I could barely get the words out through my tears yesterday as I told her I needed her to tell me if the upside downness ends.
I'm pretty sure that that conversation did more for me than any professional help ever will. What a relief to hear someone say that the place I find myself in is not something to fix, but a place to rest in, in order that the work being done in the depths of me can be done.
Wednesday, February 27, 2013
Laying It Down
Every February I get a letter from the breast cancer prevention program reminding me to call and book my yearly screening mammogram. With a strong family history of breast cancer it seems reasonable, no? I'd been bracing myself for this year's letter and when it came I stuck it to my fridge and said out loud, 'you fuckers.' You see, last February's mammogram culminated in radiologists deciding the cancerous lump was a cyst and I was free and clear until this year's check up.
Had it not been for the weight loss, which led to the CT scan, which led to the needle biopsy, which led to the surgeon ordering a breast MRI, who knows when the breast cancer would have been discovered. Had it not been for the surgeon ordering the breast MRI, before it was realized that my pathology report was mixed up with someone else's, and then deciding to go ahead with it anyway after the correct pathology report from my needle biopsy said there was no cancer, who knows how this would have played out. The needle biopsy missed the tumour completely. What a soap opera.
A day after I got the letter I saw my doctor. As we talked, and the mammogram letter came up, he listened to me and then said, "you seem to be in the angry phase." I so wanted to reply, "let's just cut one of your balls off and see how you feel about that, okay?"
How long will it be before I stop cupping my hand over the place where my breast was and mourn its absence? Two days after my mastectomy, as I stepped onto the mat that triggered the automatic exit door of the hospital, I felt my body hesitate. My right breast was somewhere in the building and for a moment I felt disoriented. I suppressed the urge to yell, "I won't forget you."
At my final appointment with the surgeon this week, with compassion in his eyes and firmness in his voice he said, "You need to find a way to move forward. Yes, mistakes were made. Those mistakes saved your life." Tears sprang up in my eyes as I recognized the truth in what he said. It's really the same as what the oncologist said to me two weeks ago. Examine the story I am telling myself. Don't let it define me. Through tears I told the surgeon, "The mistakes broke me."
Look at what it's cost me. Give me back what I've lost. That's really what I want to shout. I'm no longer who I was, no longer believe what I used to believe about just about everything in life. I am continually filtering thoughts when talking with other people. Trite answers I used to believe come to mind and I realize I don't believe in those answers any more. Examined and left wanting by my words I told a friend last week that I feel like I am being rendered mute.
And so I've made several phone calls reaching out for professional help in moving forward. Intuitively I know that some kind of ritual to honour my journey would be healing. There must be a way to move forward without feeling like I am dismissing just how deeply the twists and turns have affected me. A way to bless the journey and release the anger. I know that everyone who goes through an injustice of some kind must finally lay it down or become bitter. Lord have mercy.

Had it not been for the weight loss, which led to the CT scan, which led to the needle biopsy, which led to the surgeon ordering a breast MRI, who knows when the breast cancer would have been discovered. Had it not been for the surgeon ordering the breast MRI, before it was realized that my pathology report was mixed up with someone else's, and then deciding to go ahead with it anyway after the correct pathology report from my needle biopsy said there was no cancer, who knows how this would have played out. The needle biopsy missed the tumour completely. What a soap opera.
A day after I got the letter I saw my doctor. As we talked, and the mammogram letter came up, he listened to me and then said, "you seem to be in the angry phase." I so wanted to reply, "let's just cut one of your balls off and see how you feel about that, okay?"
How long will it be before I stop cupping my hand over the place where my breast was and mourn its absence? Two days after my mastectomy, as I stepped onto the mat that triggered the automatic exit door of the hospital, I felt my body hesitate. My right breast was somewhere in the building and for a moment I felt disoriented. I suppressed the urge to yell, "I won't forget you."
At my final appointment with the surgeon this week, with compassion in his eyes and firmness in his voice he said, "You need to find a way to move forward. Yes, mistakes were made. Those mistakes saved your life." Tears sprang up in my eyes as I recognized the truth in what he said. It's really the same as what the oncologist said to me two weeks ago. Examine the story I am telling myself. Don't let it define me. Through tears I told the surgeon, "The mistakes broke me."
Look at what it's cost me. Give me back what I've lost. That's really what I want to shout. I'm no longer who I was, no longer believe what I used to believe about just about everything in life. I am continually filtering thoughts when talking with other people. Trite answers I used to believe come to mind and I realize I don't believe in those answers any more. Examined and left wanting by my words I told a friend last week that I feel like I am being rendered mute.
And so I've made several phone calls reaching out for professional help in moving forward. Intuitively I know that some kind of ritual to honour my journey would be healing. There must be a way to move forward without feeling like I am dismissing just how deeply the twists and turns have affected me. A way to bless the journey and release the anger. I know that everyone who goes through an injustice of some kind must finally lay it down or become bitter. Lord have mercy.
Tuesday, February 19, 2013
The Stories We Tell
"The stories we tell ourselves affect how we live our lives."
That's the oncologist words above, challenging me to examine the story I tell myself about my cancer journey and my way forward from here. He's said it because I mentioned again about having so many twists and turns along the way and that perhaps that's compounding the awful side effects of the estrogen blocker medication I'm on.
In the echo of his words I feel lost, unable to grasp what it looks like to be finished with appointments and to move forward. I don't want it to be over either but I don't know why.
It takes a night's sleep to grasp that he was telling me: "You are cancer free, go live your life, don't let yourself be defined by this." A faint glimmer of hope stirs in me at the phrase 'cancer free' and I feel guilty that I have no energy or desire to do a happy dance even though I recognize it is good, good news. There is a part of me that wants to march back into his office and say defiantly, "I will never forget" and I think to myself what an ungrateful wretch I am.
I feel like I am being yanked in a game of tug of war with one arm glued to the rope in front of me and one arm reaching for the rope behind that is just out of my reach. I'm crying as I move forward and it's the mastectomy side's arm being pulled forward. Damn, it hurts.
It takes me a week to see that the oncologist was never asking me to forget what happened. My discomfort with moving forward comes from believing I have to either move forward or cling to the past. I breathe a sigh of relief when I realize that I can both move forward and honour the past. The tension between the two is much like the pull of my mastectomy scar every time I stretch out my arm.
While I don't want to be defined solely by this part of my journey I will never be the person I was before it ever again.
And that will always be my story.

That's the oncologist words above, challenging me to examine the story I tell myself about my cancer journey and my way forward from here. He's said it because I mentioned again about having so many twists and turns along the way and that perhaps that's compounding the awful side effects of the estrogen blocker medication I'm on.
In the echo of his words I feel lost, unable to grasp what it looks like to be finished with appointments and to move forward. I don't want it to be over either but I don't know why.
It takes a night's sleep to grasp that he was telling me: "You are cancer free, go live your life, don't let yourself be defined by this." A faint glimmer of hope stirs in me at the phrase 'cancer free' and I feel guilty that I have no energy or desire to do a happy dance even though I recognize it is good, good news. There is a part of me that wants to march back into his office and say defiantly, "I will never forget" and I think to myself what an ungrateful wretch I am.
I feel like I am being yanked in a game of tug of war with one arm glued to the rope in front of me and one arm reaching for the rope behind that is just out of my reach. I'm crying as I move forward and it's the mastectomy side's arm being pulled forward. Damn, it hurts.
It takes me a week to see that the oncologist was never asking me to forget what happened. My discomfort with moving forward comes from believing I have to either move forward or cling to the past. I breathe a sigh of relief when I realize that I can both move forward and honour the past. The tension between the two is much like the pull of my mastectomy scar every time I stretch out my arm.
While I don't want to be defined solely by this part of my journey I will never be the person I was before it ever again.
And that will always be my story.
Tuesday, February 12, 2013
Best News Ever
Was declared cancer free yesterday. Huge, huge, relief. Feel like I can now move forward. Thank you for all your prayers and support especially these past six months.
Wednesday, February 06, 2013
Bumping
"I don't want to walk timidly through life." I say this to Fr. Charlie, my spiritual director. It is a relief to unload all my fears and hopes and gut honest thoughts. We haven't spoken since the day before my mastectomy. There is a lot of ground to cover. After several hours I leave his office, affirmed once again in my humanity.
I had almost cancelled the appointment because the weatherman had been forecasting snow and I have become a coward when it comes to winter driving. I find the need to talk myself through many things these days. It's as if well, because of the cancer diagnosis I realize on another level that if that can happen anything can happen. So I constantly have to remind myself that just because anything can happen doesn't mean it will happen. And like a boat gently tapping up against the dock, waves constantly keeping it in motion, I keep bumping up against fear of the unknown.

I had almost cancelled the appointment because the weatherman had been forecasting snow and I have become a coward when it comes to winter driving. I find the need to talk myself through many things these days. It's as if well, because of the cancer diagnosis I realize on another level that if that can happen anything can happen. So I constantly have to remind myself that just because anything can happen doesn't mean it will happen. And like a boat gently tapping up against the dock, waves constantly keeping it in motion, I keep bumping up against fear of the unknown.
Thursday, January 31, 2013
Fumbling The Ball
** "I'm getting less moody, aren't I?" He pauses and then says, "A little." I start to tell him just how wrong he is. I am a LOT less moody. And then I start to laugh. Right. Dearest One walked right into a trap of the sort of "does this dress make me look fat?" variety. I let go of my need to be right and realize that even my protest shows that I'm not quite where I thought I was.
** "I didn't recognize you because you were so skinny." It's a few hours later and we're in the grocery store. I hunt up and down the aisles for something when I see Dearest One talking to an elderly couple we haven't seen since last summer. Back then we talked about how fortunate I was that they caught the pathology report mistake before I had my breast removed. I have no energy to tell them what came next. I duck around the corner and continue shopping. I stop to dig through my purse and find my cell phone. I expect Dearest One to send me a text and ask me where he can find me. Except he didn't. He came looking for me and then walked right by the aisle I was in because he didn't recognize me. I wish this made me happy.
** "Are you the wife?" Them's fighting words although the telemarketer on the other end of the phone doesn't know this. I tell him that no, I'm not THE wife. He asks me to repeat myself. I do. Then his voice takes on the hue of someone backing away slowly from the room and he tells me he will phone back later. Good call. I was getting ready to tell him I may be moody and I may be skinny but I am neither an article nor an adjective. Sigh.

** "I didn't recognize you because you were so skinny." It's a few hours later and we're in the grocery store. I hunt up and down the aisles for something when I see Dearest One talking to an elderly couple we haven't seen since last summer. Back then we talked about how fortunate I was that they caught the pathology report mistake before I had my breast removed. I have no energy to tell them what came next. I duck around the corner and continue shopping. I stop to dig through my purse and find my cell phone. I expect Dearest One to send me a text and ask me where he can find me. Except he didn't. He came looking for me and then walked right by the aisle I was in because he didn't recognize me. I wish this made me happy.
** "Are you the wife?" Them's fighting words although the telemarketer on the other end of the phone doesn't know this. I tell him that no, I'm not THE wife. He asks me to repeat myself. I do. Then his voice takes on the hue of someone backing away slowly from the room and he tells me he will phone back later. Good call. I was getting ready to tell him I may be moody and I may be skinny but I am neither an article nor an adjective. Sigh.
Tuesday, January 29, 2013
The Little Engine That Could
It was -45C with the wind chill factored in this morning. The windows are frosted up nearly to the top but the sun is shining through them. The northern version of stained glass windows courtesy of Jack Frost. A good day to stay inside and keep warm.
I'm healing. It feels like there is light at the end of this year long tunnel. And hope that this cancer journey will truly be a distant memory one day. I look forward to when I don't tag a post with the word cancer. My mood swings are lessening. My goal this week is to get through it without telling someone to eff themselves. So far so good.
I'm learning that skinny people really do need a cushion for their chair because otherwise their butt hurts too much to sit for very long. I had to ask only daughter last night if that was true because it's a brand new phenomena for me. After I asked her I excused myself and went and got a cushion for my kitchen chair so we could continue our talk via Skype.
I took a writing course last December where the instructor told us that a good writer didn't write about their relationship with God in a post because she said it put up a wall between writer and reader. That intimate place where really only the two involved could enter into it. I've mulled her opinion over a lot since then.
My prayers of late have mostly been silent ones. Except for the time after communion where I knelt and the only words that came to mind, in the vein of the little engine that could, were, "I need you. I need you. I need you."

I'm healing. It feels like there is light at the end of this year long tunnel. And hope that this cancer journey will truly be a distant memory one day. I look forward to when I don't tag a post with the word cancer. My mood swings are lessening. My goal this week is to get through it without telling someone to eff themselves. So far so good.
I'm learning that skinny people really do need a cushion for their chair because otherwise their butt hurts too much to sit for very long. I had to ask only daughter last night if that was true because it's a brand new phenomena for me. After I asked her I excused myself and went and got a cushion for my kitchen chair so we could continue our talk via Skype.
I took a writing course last December where the instructor told us that a good writer didn't write about their relationship with God in a post because she said it put up a wall between writer and reader. That intimate place where really only the two involved could enter into it. I've mulled her opinion over a lot since then.
My prayers of late have mostly been silent ones. Except for the time after communion where I knelt and the only words that came to mind, in the vein of the little engine that could, were, "I need you. I need you. I need you."
Tuesday, January 22, 2013
Pinning The Tail
I've spent the past week trying to point in the direction of getting back to normal, whatever 'normal' is. One thing I've concentrated on is continuing to get my range of motion back on my mastectomy side and I am winning that challenge. From what I can gather I will feel the pull/tightness all the way across my chest for a good long time yet but am grateful that I can stretch further than I could last week. The day I can make a full snow angel motion with my arms will be a day to celebrate.
This past week was also the first medical appointment free week I've had in a very long time. It's made me realize just how much of my time and mental energy has centered on the next medical thing in front of me. I told a friend that it's felt a little like playing that pinning the tale on the donkey game and maybe I'm starting to have some clarity in the direction I want to aim for now. Figuratively speaking I'm less dizzy and more clear headed.
One of the guided imagery CDs I've listened to throughout this process invites a person to accept their feelings of worry, fear, grief and anger as their inner truth of the moment, without self criticism or blame. That doing so will be encourage the healing process. The key word there is 'moment'. I felt relief and a bit of a chuckle the first time I heard that sentiment. Inner truth of the moment. A reminder that there are no permanent feelings no matter how much that seems impossible in the moment. It takes way less energy to acknowledge a feeling than it does to repress it. Funny how I needed to hear someone tell me that it was okay to feel all those things without self criticism before thinking that was an option.
I had a long talk with God today about wanting to feel other feelings. The ones that make me feel connected to other people and to life. I am tempted to chuck the estrogen blocking medication that has my hormones all awry and my mood in disarray. Then there is the fear that if I do that it will be my fault if my cancer reoccurs. See how my brain works? I have bumped up against fear and my illusion of control so many times through all of this. Maybe not any more than before other than I am aware of the bump. More aware of the 'oh, here it is again, and again, and again.' in the way that is challenging its presence instead of being oblivious to it even being there. I guess that is progress. For today I'll take it.
Tuesday, January 15, 2013
Relief
Tumour test results came back today and I don't need chemo. I am so, so relieved. There is only a PET scan ahead of me before the end of the month - which will hopefully clear up if they need to investigate further why the AP node in my chest is enlarged and the node in my armpit. After that I am good to go. It feels like a huge weight off my shoulders. The doctor is also hopeful I won't be so bitchy now.

Sunday, January 13, 2013
Some Fight In Me
That about sums up my day yesterday.
I went to my home group meeting for the first time in six weeks. Drain tube free. Pain free. Good weather. I was grateful that the hour drive was possible. I knew that getting out of my head was the best medicine for me. It would be a win-win for everyone. I sat in my chair before the meeting and felt such relief to be there even though I found it harder to be honest when people asked how I was than to fake it and be cheerful and upbeat. My ego gets caught up in wanting to be a poster child for breast cancer so people can tell me how wonderful I am. My ego will seek its glory any which way it can. It's not picky.
And then he came in and any hope I had for accolades vanished in about 15 seconds flat. He is like a father figure to me. He is as tough as nails and has the softest heart around. His way of dealing with the worry that my increasing weight loss caused him was to be gruff with me. We also have known one another long enough to have had deep conversations that have created a mutual respect of one another. He is the real deal.
So yesterday I was on my way back to my seat with a cup of tea when he hugged me and asked me how I was. "Not good." I tell him. "What do you mean 'not good'?" He said this as if it's against the law to not be fine. I looked at him and asked, "What? It's against the rules of being a human being to be not good?" "Yes." He said it in a 'you're darn tootin' kind of tone. And before the filter between my brain and my mouth had a chance to engage I looked at him and said, "Fuck you."
I had an internal 'oh shit I only meant to think that, not say it' moment. Then he laughed and said, "Good. You have some fight in you."
After the meeting I tell him I am sorry. That I hope I never say that to him again. He tells me that I need to be able to say things like that to people like him who can take it. I put my hand on his heart and say, "No. It's no excuse. I know you have a tender heart and I don't want to walk on it." He looks at me and says, "I have no idea what you are going through." So few people have had the humility to say that to me and it brought tears to my eyes.
Friday, January 11, 2013
Glimmers
** little glimmers of hope the past few days have been a relief.
** thank you for your support and prayers. I think we often fail to realize just how much prayer can do.
** my spiritual director emailed me this week and suggested that I offer all that I feel right now, in lieu of spoken words, as a prayer to God. I had a really good cry in response to that.
** the sun shone today and so much more seems possible in the sunshine.

** thank you for your support and prayers. I think we often fail to realize just how much prayer can do.
** my spiritual director emailed me this week and suggested that I offer all that I feel right now, in lieu of spoken words, as a prayer to God. I had a really good cry in response to that.
** the sun shone today and so much more seems possible in the sunshine.
Tuesday, January 08, 2013
Off The Train Please
** As a child I made it through each day by looking ahead to something else. It was like living in perpetual limbo. That's what I feel like I am doing these days while waiting to hear what comes next in the cancer journey.
** Had another bit of fluid drained off my chest yesterday. I keep wanting to write breast instead of chest but it's not a breast any more so what do I call it? You know, that place where my breast used to be? It's a bit disconcerting to have a huge honking needle stuck in there and to not feel it in the least. When the doctor asked if he could use a bigger bore needle to suck out the fluid I was like, um, I can't feel anything there anyway so do what you need to do. I told Dearest One the other day that that side of my chest looks like a toad. A squished toad. I want flat, totally flat like it was before complications set in. I feel like I'm being hard to please. Jeepers, they removed the cancer, what more do you want, Hope?
** Got a copy of my latest CT scan report today. It reported not only the size of suspicious nodes elsewhere in the body - dear God please no more biopsies - but that the back pain I've been having for months is explained by a degenerating disc in my back. One less doctor's appointment needed now.
** the doctor I saw today was incredibly kind, compassionate and just plain decent. I told him how much I appreciated the way he practised medicine and how much difference it made from this patient's point of view. He told me how he has worried about my unexplained weight loss in case they are missing something. The doctors all confer that the tumour in my breast doesn't explain it.
He explained exactly what was happening in my body with the new drug from the oncologist and that it would take three months for my body to adjust. I told him I could handle anything for three months. It was the five years of drugs that was hard. Then I said, "Oh, hell, I can do anything for five years, one day at a time." I just don't want to.
For the second time in a week a medical professional suggested anti-depressants to help me get over this hump. We'll see. Hopefully all my posts for the next three months won't be estrogen starved brain cell induced writings.
** Yesterday I tried on winter jackets and was disturbed that the size I tried on was just about too loose. Not being in control of my weight loss is the most vulnerable feeling. And I feel guilty every time I write or talk about it because it is many a woman's dream to lose weight without effort. Millions have been spent in hopes of that promise.
** I can't believe how much I am hankering after certainty. Every time there is a new bit of medical information that leads to more questions than answers I can hardly stand it. Off the train. I just want off the train.
** Today someone, in response to my sharing the grief I am feeling at losing my breast, tried to tell me all the reasons I should be thankful instead. I just looked at her and said I need to go through the grieving and that none of her suggestions changed that. She tried to explain how I should have perspective in different words. I had to tell her that it didn't change the grief process. I could, to ease my own pain, and to make it easier for others, shove that grief way down deep, put on my happy face and pretend otherwise. But I'm not going to do it. I told my friend that I wasn't going to get stuck in the grief but I was going to go through it.
I don't know how to explain to people that just because I am feeling grief and expressing it doesn't mean I have no perspective, know no gratitude. It's not an either or scenario but a both and one. I feel intense grief and I feel grateful that what I'm facing is much less serious than some other people's. But dammit, I have to live through it and for once in my life I'm going straight through it and not try to sneak my way around it. Why is that so hard for people to accept? Why can't they celebrate that I am going through it instead of around it?
There's part of me that would love to pretend I am fine. But man, pretending my feelings are not my feelings has bitten me in the butt more times than I can count. I told my sponsor the other day that the only way I'm getting through this right now is knowing that feelings aren't permanent. And knowing that God is with me in it whether I feel his presence or not.
** Today in a parking lot I was driving behind a young woman who was walking arm in arm with a woman my age. They were so engrossed in their conversation that they didn't see me behind them. I watched their body language and it was so evident how fond of one another they were. I just about rolled my passenger window down, when they moved off to the side so I could pass them, to tell them how much pleasure I felt watching them so thoroughly enjoy each other's company.
And because it's all about me I longed for someone to walk like that through this journey with me.

** Had another bit of fluid drained off my chest yesterday. I keep wanting to write breast instead of chest but it's not a breast any more so what do I call it? You know, that place where my breast used to be? It's a bit disconcerting to have a huge honking needle stuck in there and to not feel it in the least. When the doctor asked if he could use a bigger bore needle to suck out the fluid I was like, um, I can't feel anything there anyway so do what you need to do. I told Dearest One the other day that that side of my chest looks like a toad. A squished toad. I want flat, totally flat like it was before complications set in. I feel like I'm being hard to please. Jeepers, they removed the cancer, what more do you want, Hope?
** Got a copy of my latest CT scan report today. It reported not only the size of suspicious nodes elsewhere in the body - dear God please no more biopsies - but that the back pain I've been having for months is explained by a degenerating disc in my back. One less doctor's appointment needed now.
** the doctor I saw today was incredibly kind, compassionate and just plain decent. I told him how much I appreciated the way he practised medicine and how much difference it made from this patient's point of view. He told me how he has worried about my unexplained weight loss in case they are missing something. The doctors all confer that the tumour in my breast doesn't explain it.
He explained exactly what was happening in my body with the new drug from the oncologist and that it would take three months for my body to adjust. I told him I could handle anything for three months. It was the five years of drugs that was hard. Then I said, "Oh, hell, I can do anything for five years, one day at a time." I just don't want to.
For the second time in a week a medical professional suggested anti-depressants to help me get over this hump. We'll see. Hopefully all my posts for the next three months won't be estrogen starved brain cell induced writings.
** Yesterday I tried on winter jackets and was disturbed that the size I tried on was just about too loose. Not being in control of my weight loss is the most vulnerable feeling. And I feel guilty every time I write or talk about it because it is many a woman's dream to lose weight without effort. Millions have been spent in hopes of that promise.
** I can't believe how much I am hankering after certainty. Every time there is a new bit of medical information that leads to more questions than answers I can hardly stand it. Off the train. I just want off the train.
** Today someone, in response to my sharing the grief I am feeling at losing my breast, tried to tell me all the reasons I should be thankful instead. I just looked at her and said I need to go through the grieving and that none of her suggestions changed that. She tried to explain how I should have perspective in different words. I had to tell her that it didn't change the grief process. I could, to ease my own pain, and to make it easier for others, shove that grief way down deep, put on my happy face and pretend otherwise. But I'm not going to do it. I told my friend that I wasn't going to get stuck in the grief but I was going to go through it.
I don't know how to explain to people that just because I am feeling grief and expressing it doesn't mean I have no perspective, know no gratitude. It's not an either or scenario but a both and one. I feel intense grief and I feel grateful that what I'm facing is much less serious than some other people's. But dammit, I have to live through it and for once in my life I'm going straight through it and not try to sneak my way around it. Why is that so hard for people to accept? Why can't they celebrate that I am going through it instead of around it?
There's part of me that would love to pretend I am fine. But man, pretending my feelings are not my feelings has bitten me in the butt more times than I can count. I told my sponsor the other day that the only way I'm getting through this right now is knowing that feelings aren't permanent. And knowing that God is with me in it whether I feel his presence or not.
** Today in a parking lot I was driving behind a young woman who was walking arm in arm with a woman my age. They were so engrossed in their conversation that they didn't see me behind them. I watched their body language and it was so evident how fond of one another they were. I just about rolled my passenger window down, when they moved off to the side so I could pass them, to tell them how much pleasure I felt watching them so thoroughly enjoy each other's company.
And because it's all about me I longed for someone to walk like that through this journey with me.
Thursday, January 03, 2013
At The Dinner Table
** realized yesterday that the number of people one can truly take into their confidence about how things are and not get shit on is small. Reminded once again that some people find it hard when I can't summon up any rah-rah cheerleader spirit for my own journey. I wanted to say I just didn't have any emotional energy left to be okay for their sake. I hung up the phone feeling deficient in the faith department and general human being department. I didn't want pity I wanted empathy. Sponsor later reminded me that expectations can give way to disappointment. True.
** new medication is doing a number on my whole being. Today was a weepy day. Oncologist said to give the medication a few days break and then try again at half a dose. I hate feeling like a stranger in my own skin.
** phone calls where the other person is understanding without jumping into the pool with me are invaluable. It makes climbing out of the pool much easier and inviting. I just wanted someone else to tell me it was okay to be where I was, that it wouldn't last forever, and not try to fix me. She did that. Pure gift.
** was supposed to get all test results tomorrow, waiting over finally. Oncologist called today to cancel tomorrow's appointment because the most important test result isn't back yet. It felt like the straw that broke the camel's back. Not living for this day. Not accepting life on life's terms. Just tears and despair.
** Oncologist called back later in the day with a little bit of test results that were hopeful. That helped balance the earlier call where other test results showed a possible need for more biopsies.
** had a frank talk with God about how I was feeling. Read this quote that made my day:
"My belief is that when you're telling the truth, you're close to God. If you say to God, "I am exhausted and depressed beyond words, and I don't like You at all right now, and I recoil from most people who believe in You," that might be the most honest thing that you've ever said. If you told me you had said to God, "It is all hopeless, and I don't have a clue if You exist, but I could use a hand," it would almost bring tears to my eyes, tears of pride in you, for the courage it takes to get real -- really real. It would make me want to sit next to you at the dinner table." Anne Lamott, "Help, Thanks, WOW"

** new medication is doing a number on my whole being. Today was a weepy day. Oncologist said to give the medication a few days break and then try again at half a dose. I hate feeling like a stranger in my own skin.
** phone calls where the other person is understanding without jumping into the pool with me are invaluable. It makes climbing out of the pool much easier and inviting. I just wanted someone else to tell me it was okay to be where I was, that it wouldn't last forever, and not try to fix me. She did that. Pure gift.
** was supposed to get all test results tomorrow, waiting over finally. Oncologist called today to cancel tomorrow's appointment because the most important test result isn't back yet. It felt like the straw that broke the camel's back. Not living for this day. Not accepting life on life's terms. Just tears and despair.
** Oncologist called back later in the day with a little bit of test results that were hopeful. That helped balance the earlier call where other test results showed a possible need for more biopsies.
** had a frank talk with God about how I was feeling. Read this quote that made my day:
"My belief is that when you're telling the truth, you're close to God. If you say to God, "I am exhausted and depressed beyond words, and I don't like You at all right now, and I recoil from most people who believe in You," that might be the most honest thing that you've ever said. If you told me you had said to God, "It is all hopeless, and I don't have a clue if You exist, but I could use a hand," it would almost bring tears to my eyes, tears of pride in you, for the courage it takes to get real -- really real. It would make me want to sit next to you at the dinner table." Anne Lamott, "Help, Thanks, WOW"
Sunday, December 30, 2012
Snippets Of Life
** drain tube #2 came out Boxing Day. So far so good. When Dearest One was helping get the tensor bandage back on again this morning I lamented that I just wanted to be done with needing help getting dressed and presentable. Tomorrow is ten weeks post mastectomy. Dearest One reminded me that some people don't get to ten weeks post mastectomy.
I feel like a two year old when they wrestle their clothes away from you because they want to do it themselves. Perhaps in a week or so I will be able to do that minus the wrestling. Simple things that can both irritate the heck out of me when I can't do them and bring me joy when I can. The rest of the time I take them completely for granted.
** I made the mistake of shopping for clothes on Boxing Day. Looking in the mirror with a lovely new top on without wearing a prosthesis brought me close to tears; the grief enveloping me from head to toe. Reminder to self to never go shopping for clothes without two breasts, a fake one will do.
** new drug for blocking estrogen is giving me morning sickness like symptoms. Twenty four hours a day. Not sure I can do this for five years. Hopefully it will lessen. So far ginger tea hasn't helped settle the tummy.
** it's also giving me mood swings which I haven't had in years. I don't miss them one bit. Neither does Dearest One. Not sure I can do five years of PMS like symptoms either. I have bitten my lip a hundred times over the past few days. I am grateful that years of practising restraint of pen and tongue means that not every single thing that I think needs to be said out loud. And that I don't believe everything I think helps too.
** am going to see Les Miserables tomorrow. I saw The Hobbit a few days ago. That's more movies in one week than I've seen in a theatre in years.
** went to a family gathering yesterday with 40+ people. First time I've participated in playing games in the 30 years I've been a part of this family. Turns out a person can change and enjoy themselves in the process. Was good to put a crack in the "But I don't (fill in the blank)" rut I can so easily stay in.

I feel like a two year old when they wrestle their clothes away from you because they want to do it themselves. Perhaps in a week or so I will be able to do that minus the wrestling. Simple things that can both irritate the heck out of me when I can't do them and bring me joy when I can. The rest of the time I take them completely for granted.
** I made the mistake of shopping for clothes on Boxing Day. Looking in the mirror with a lovely new top on without wearing a prosthesis brought me close to tears; the grief enveloping me from head to toe. Reminder to self to never go shopping for clothes without two breasts, a fake one will do.
** new drug for blocking estrogen is giving me morning sickness like symptoms. Twenty four hours a day. Not sure I can do this for five years. Hopefully it will lessen. So far ginger tea hasn't helped settle the tummy.
** it's also giving me mood swings which I haven't had in years. I don't miss them one bit. Neither does Dearest One. Not sure I can do five years of PMS like symptoms either. I have bitten my lip a hundred times over the past few days. I am grateful that years of practising restraint of pen and tongue means that not every single thing that I think needs to be said out loud. And that I don't believe everything I think helps too.
** am going to see Les Miserables tomorrow. I saw The Hobbit a few days ago. That's more movies in one week than I've seen in a theatre in years.
** went to a family gathering yesterday with 40+ people. First time I've participated in playing games in the 30 years I've been a part of this family. Turns out a person can change and enjoy themselves in the process. Was good to put a crack in the "But I don't (fill in the blank)" rut I can so easily stay in.
Sunday, December 23, 2012
Anything Could Happen
When Y2K was coming,
preparing for it was like reliving the tension of my childhood but on steroids. I
knew all about needing a plan to stay safe in the face of impending doom. So I
canned 600 jars of jams, pickles, fruit and vegetables until my cold room
looked like a jewellery case with its row upon row of pretty coloured
glass. I also had six months worth of flour, sugar, salt plus canned goods,
matches and portable stove fuel. Finally there was an out of control happening
where I couldn't be caught off guard.
When January 1, 2000 arrived with business as usual, part of me
was disappointed. I saw it as a missed opportunity to gloat about how I had
outsmarted people who were stupidly living as if they were in no imminent danger.
All I had to show for my fanatical planning was a much smaller grocery bill for
the next six months.
I watched the countdown to December 31st this year with detachment
combined with occasional bouts of patting myself on the back that I wasn't like
those doom sayers My self- righteousness deflated like a popped balloon
when I bumped up, for what felt like the zillionth time, against my fear of not
being prepared for whatever might happen next, just a few days before the supposed
end of the world.
As part of an ecumenical class gearing up for the coming of light
we were asked to sit in complete darkness for ten minutes before lighting a
candle. Once I shut off the lamp in my office and stuffed the chinks of light
coming through the crevices I was left in a blackness that took me right back
to childhood. I strained to make out shapes of things in the room just as I did
as a child. Back then I would work myself up into such a state until I became
convinced that not only had the chair across the room moved but so had the
creepy person I imagined my clothes had morphed into as well. I couldn't even
run for help because I believed the Beagle Boys lived
under my bed and only came out of their trapdoor at night. No way was I going
to risk one of them reaching out to grab my ankle as they broke free from their
prison.
So when eerie images began to form as I sat in the dark a few
nights ago, I asked myself why was I scared of the dark. "Because in
the dark anything could happen and I won't see it coming." Not exactly
what I thought the darkness would reveal to me.
The tension between who I was as a child, who I am now, and who I
have yet to become feels taut in these moments as I`m catapulted back to being
a 9 year old girl with a vivid imagination in the dark.
When my Zen timer (oh, the irony) made its Buddha bowl sound I lit
my candle and it`s glow grew to illuminate a photo on my desk of my parents and
Dearest One. I felt comforted to be among people whose faces shine with love
for me. I didn't always feel that way.
My mother was the proverbial boogie man of my childhood. I never knew when she would morph into something as scary as the clothes on my chair in the dark, verbally, emotionally or physically lashing out with such randomness and without predictability. I could never figure out as a child if she loved me and I stood before her
closed bedroom door on many a Sunday morning trying to get up the nerve to
knock and ask timidly, "Do you love me?" I never got up the courage to go past raising my fist a hairbreadth`s away
from my parents` unfinished wooden door. It was a question that hung in the air for decades.
So I find there is a tension as well between the mother I grew up with and the one I have now and the unknown one I will have as she continues to age. The woman who I today, without a doubt, know loves me. The woman who was the source of my greatest fear as a child was the one who comforted me the most in the illuminated darkness this week.
If that isn't a sign of hope I don't know what is.
If that isn't a sign of hope I don't know what is.
Friday, December 14, 2012
Crossing The Line
This week we travelled for a second opinion about my treatment options.
It was surreal to be in a hospital solely devoted to cancer care. Everywhere we looked was a person carrying a green piece of paper which signalled they had gone through patient registration and were headed somewhere within the building for an appointment related to having cancer. I secretly wanted to stop every person and tell them that green was the symbolic colour for hope.
Asking for the second opinion was in that land between hard and easy for me. The doctor here mentioned I could go to that city far away for a second opinion but her tone and the way she phrased it let me know that it pushed her insecurity button when people did. I seriously considered sparing her any more button pushing at my expense. Here, let me possibly keel over and die so you don't have to feel bad about my decision. Not.
The doctor in the larger centre was refreshing. He spoke of living in the moment, being aware of what messages we internalize and listening to our hearts; on top of being passionate about oncology and treatment options and cutting edge technology.
He talked about how people feel secure because there is that yellow line down the center of the highway as if that line alone would keep a semi truck from crossing over it and hitting us. Then he related that to how we get stuck in believing this, this or that is the thing that will keep whatever we fear from happening to us.
I looked at him rather fiercely and said, "I won't get stuck." He looked back and said, "I know you won't."
There is no clear cut treatment plan right now but there will be in the New Year. I am grateful to have a doctor I trust and who is advocating for me. So much so that he is sending my tumour to another country for further testing to aide him in his decision making.
I am healing. I am hopeful.

It was surreal to be in a hospital solely devoted to cancer care. Everywhere we looked was a person carrying a green piece of paper which signalled they had gone through patient registration and were headed somewhere within the building for an appointment related to having cancer. I secretly wanted to stop every person and tell them that green was the symbolic colour for hope.
Asking for the second opinion was in that land between hard and easy for me. The doctor here mentioned I could go to that city far away for a second opinion but her tone and the way she phrased it let me know that it pushed her insecurity button when people did. I seriously considered sparing her any more button pushing at my expense. Here, let me possibly keel over and die so you don't have to feel bad about my decision. Not.
The doctor in the larger centre was refreshing. He spoke of living in the moment, being aware of what messages we internalize and listening to our hearts; on top of being passionate about oncology and treatment options and cutting edge technology.
He talked about how people feel secure because there is that yellow line down the center of the highway as if that line alone would keep a semi truck from crossing over it and hitting us. Then he related that to how we get stuck in believing this, this or that is the thing that will keep whatever we fear from happening to us.
I looked at him rather fiercely and said, "I won't get stuck." He looked back and said, "I know you won't."
There is no clear cut treatment plan right now but there will be in the New Year. I am grateful to have a doctor I trust and who is advocating for me. So much so that he is sending my tumour to another country for further testing to aide him in his decision making.
I am healing. I am hopeful.
Sunday, December 09, 2012
Cradling Her Face
This morning I brought my breakfast back to bed, added in a heated wheat bag to keep me warm, stopped and picked up a long sleeve shirt I had draped over the heat register and settled in to finish reading my book. It was -41C when I went to bed last night so extra heat was a must!
Two minutes later one of the Pugs was whining to be let up on the bed to join me. So I hoisted her up - the heaviest thing I've lifted since surgery - and she settled in for a nap. Or so I thought.
Before I knew it she was pacing back and forth at the end of the bed looking over the edge and whining. She wanted to be back down on the floor but was too scared to jump. I reached to help her and she ducked away. I tried again and again she ducked. Finally she came and looked up at me, her little tail wagging like an intermittent wind-shield wiper. I cradled her face in my hands and told her that she either had to get up the courage to jump or stop her whining.
I went back to my book and she went back to her pacing. Her story having as much to teach me about life as the one I was holding in my hand.
Eventually she jumped.

Two minutes later one of the Pugs was whining to be let up on the bed to join me. So I hoisted her up - the heaviest thing I've lifted since surgery - and she settled in for a nap. Or so I thought.
Before I knew it she was pacing back and forth at the end of the bed looking over the edge and whining. She wanted to be back down on the floor but was too scared to jump. I reached to help her and she ducked away. I tried again and again she ducked. Finally she came and looked up at me, her little tail wagging like an intermittent wind-shield wiper. I cradled her face in my hands and told her that she either had to get up the courage to jump or stop her whining.
I went back to my book and she went back to her pacing. Her story having as much to teach me about life as the one I was holding in my hand.
Eventually she jumped.
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